Thank you to all of you who want to be a blessing. To reach out and do for others. I have heard from people all over the globe. Your sweet emails of encouragement and love have blessed me. What a beautiful image of how much our God cares for us. From the bottom of our hearts, Thank-You!
Please know, that this song is my prayer. Not for my glory, but to Glorify our God. To seek to serve Christ.
May you be Blessed Richly by our Lord for seeking to serve His Body.
-----------------------------------------------------------------------------------------------------------For those of you who have been praying for our Elliott. We went to Emory University Children's Hospital in Atlanta yesterday. Elliott has been officially diagnosed with Systemic Onset Juvenile Idiopathic Arthritis. We are thankful we have finally put a diagnoses on all of his symptoms. To have answers, is a huge blessing, though no parent ever wants their child to be diagnosed with a life long illness. Systemic JIA is the most rare form of JIA. For anyone who wants to read more about it, here are a few links I found that seem to describe it best.
http://youtu.be/zwKOX1z6ePU
http://www.childrenshospital.org/az/Site2957/mainpageS2957P1.html
The realities of this diagnoses are grim. And we covet your prayers right now. Elliott's current scripts are not effectively keeping inflammation at bay. His Doctor has increased his dose, in hopes that works. If not, Elliott could have to go on a steroid medication, given either by shots or IV weekly. Not something we want to put him through at all. Also, his vision is being affected. We will be seeing an eye specialist soon. We are praying his prescription that he was just given in June is still good. But, because the inflammation in his body, it is very likely that his eyes are getting worse too.
Though I had done my research and reading, seeing other children sitting in the waiting room at the doctors office with very real, visible disabilities from the same disease my son has been diagnosed with, shook me
up. That is our reality now. And it can be very scary. I am so thankful that our Hope is in Christ. He has given me so much peace.
Elliott turned six years old last week. He has been through SO much for being just six. After our doctors appointment, I decided we needed to have fun. So we spent the day hanging out in Atlanta. It was the first time I've driven there by myself with all four of my children.
I didn't get lost, we made it on time, and I didn't loose any of my children!
Miracles DO happen!
At the end of the day, as the sun was setting and the sky was bright orange,we piled in the van to head home. I was talking to the children about how much fun I had with them. I hear Clara say from the back seat, "You know what was the most fun for us today Mom?", I looked in the rear view mirror, and see her holding Elliott's hand. I smile and say "What?". Her and Elliott say together "Being with YOU!".
I don't deserve them.With a very real diagnoses. With the reality of what we could be facing in the days and years to come. All of it faded with the sun. And my heart warmed up with the reality of how blessed I am to just be with them.
I am so humbled today. Thankful for the opportunities to serve others and serve our Lord.
1 comment:
One of the hardest parts was realizing that we will now have endless doctors appts & its considering a "disability". We dont live our lives like it is but thats the reality of it when we face it. We are thankfully very positive people and I think that makes our children stronger. Prayers for you and your son. I understand too much of what you are going through.
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